I want to put Shawn's less than valuable evaluation at the Mayo Clinic into context. Shawn's doctor in Chicago had extensively discussed the case with the head of endocrinology at the Mayo Clinic. It was on the recommendation of this Mayo Clinic specialist that we brought Shawn there for "a fresh set of eyes." This seemed reasonable to us because of the complexity of the clinical presentation and the potential risk associated with the possible next steps. Thus, we went to Rochester expecting that Shawn would receive a careful and thoughtful evaluation to guide us in making difficult decisions.
And to add insult to injury, they never even looked at the scans of Shawn's thymus, the suspected bad actor in this nightmare. We brought the digitized copies with us and they were never uploaded and read by the Mayo radiologists. If this is how they treated us after coming there at the suggestion of the head of endocrinology, I shudder to think how they might have acted if we had just wandered in off the street.
1 comment:
The message of Purim is that after we are thoroughly convinced that we as people can do nothing to escape a bad situation, H" provides an unforseen (and sudden) rescue. Perhaps all this happened at this very time to give you that hope.
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