Shawn's been trying to build up leg muscles and was able to walk quite a bit while at the beach - he has a new crutch that is much more comfortable to use than his cane.
As for the doctor visit, I never really know what to say after seeing a new doctor. He took lots of blood, said this could be like some of the cases he's seen but wasn't really sure, there were a number of things that didn't really fit - which seems to be a recurring theme.
He did switch medicine around quite a bit. Said that some of the medicines were obviously not doing much during an episode and that Shawn's body was fighting them during the rest of the time. Also beta blocker has stopped working once again, as his heart rate was 130 while at the office. So he switched two medicines, dropped one, and started weaning him off another. It all sounded great until the day Shawn started switching medicines. He spent the next day completely wiped out, chest pain and very high blood pressure that lasted hours rather than the normal 20-30 minutes. This caused the doctor to increase dosage of one of the new medicines and also add in another. First day of this new one was not fun, about an hour after taking it Shawn was nauseous, not long after that he was throwing up. Next night he took an anti-nausea medicine before taking it, which completely wiped him out. Since then he's been taking it right before going to bed which seems to be doing a little better.
The doctor says it will be two weeks before we really know if the new meds are working. Thus far, doesn't seem to be doing much that's different than before, but we're only a week into the two week period, so I guess we'll see.
