Friday, February 8, 2008

completely overwhelmed with gratitude

Shawn's doctor continues to be so incredible. He mentioned yesterday he was working on a letter he wanted us to look at before he sent it out; that he would email it to us. The email was sent this morning at 2:00 AM. I just finished talking to him tonight, I said "you must be completely exhausted," and he said after emailing that at 2, he had to be at an appointment this morning at 7 AM! At the end of our conversation I told him to get some sleep and he said "I'll get some sleep when you can sleep". What more is there to say? In all the many blessings we have he is certainly one of our BIGGEST ones.

On to today's news: he's had the CT scan reviewed by other radiologists (I think he said 4) and they all agree that there COULD be a shadow in the thymus. There is no more definitive scan that could be done to reach that area, the only other avenue would be a biopsy. But there are a few other tests that could help confirm before doing that - one is a urine test that's analyzed only at the Mayo Clinic, the other is a blood study that is not available in the US. He called the Mayo lab about the urine test, to find out details on how to collect the urine, but the lab is closed till Monday. So on Monday he'll get the details and then Shawn will be able to do the collection in Bloomington, and take it to the hospital to send to the Mayo. As for the other study, he (dr., not shawn) has an appointment on Wednesday with a carcinoid expert at Northwestern to see if there is a research facility in the US that might be able to perform it. (The guy is out of town till Wednesday.) So that might be a possibility as well.

All of you who are keeping Shawn in your prayers - add a prayer for Walter, his doctor. He's certainly in mine.

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