Another round of dead ends - the latest tests all came back negative. With no positive results to guide him, Shawn's doctor is not certain he's even going down the right path, and the tests to perform are getting more exotic and taking longer to get results. And because of the accuracy of the earlier tests we haven't ruled very much out at this point. He said one of the next things he'd do would take 2-3 weeks(!) and he wants to look into escalating a visit to the Mayo, where they might be able to do it more quickly in-house; also might possibly have access to other tests he doesn't. He's already been talking with one dr. at the Mayo, and said he's drafting a letter to send to some other doctors there as well as NIH.
Meanwhile, it sounds like he's had a very busy day - says he's talked to four other doctors at Northwestern about Shawn today. (I asked Shawn if his ears were burning, as it sounds like he was being discussed most of the day). And he has two others he's talking to tomorrow. The upshot of this is that there are more tests he may want to perform before moving this to the Mayo - some of which can be done in Bloomington with shorter turn around times. At the very least, we are quickly accumulating quite a lot of very smart doctors who are all thinking about Shawn's case, which has to be good.
So Shawn, maybe your best birthday present of all will be that one of these doctors will find the right test that will bring us to an answer - that would be an even better present than an iPhone! :-)
No comments:
Post a Comment