I just spoke with my doctor at the IU health center about the results of the echocardiogram. The echo showed enlarged heart and decreased cardiac function further suggesting a cardiomyopathy. The big question at this point is where do we go from here? My endocrinologist at University of Chicago thinks that seeing a cardiologist is unhelpful because while there are cadiological problems, there is no direct treatment for them short of treating the main disease. He thinks that the problem is autoimmune so we have to follow up on that.
My doctor at the health center is calling my neuromuscular doctor and a few other doctors to try and see what we can do from here.
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