Wednesday, May 21, 2008

More tests ongoing

Blood tests from last week showed very slightly high value for Shawn's liver ALT, but just barely over the reference range.


Today he's having a stress echocardiogram to see how his heartrate and blood pressure respond to exercise. Next Tuesday he goes back to the cardiologist to go over the results. The cardiologist is also concerned about Cushing's and we'll be repeating the test for that.


He's switching to yet another bp medication. Also he went off the cyproheptadine and ranatadine and back on the special diet. He just stopped these meds Monday night and already the wheezy cough, belly ache, and muscle spasms are back, shortness of breath and flushing also worse.


On June 9, he'll be back in the hospital for an overnight EEG. The plan is to try to provoke a spell with alcohol and see what happens, also draw blood during the spell. Checking in to the hospital for happy hour... that should be fun! (But somehow I doubt they'll have drinks for Dave and I as well, maybe we should bring our own?)


All of these are ways of finding more evidence of a carcinoid and/or another explanation for the symptoms before contemplating the more risky surgery to take another look at the thymus.

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