A, A, B, C, D...

It's been a rough few weeks for Shawn. Possibly in part due to the hot weather, which he doesn't tolerate well. Also my grandmother, his great-grandmother passed away last week. And finally, the clonidine, even on the higher dose seems to not be working. Put those all together and he's been feeling worse than ever.

As of today, he's adding one more medication to his alphabet of blood pressure meds - an ace inhibitor. So now he has an Ace inhibitor, Alpha blocker, Beta blocker, Calcium channel blocker, and Diuretic. :-( With all that, you think he'd have the blood pressure of a zombie, but actually when he's not having a spell it still stays right at the top edge of normal.

The fact that the clonidine (catapres) isn't doing anything at all seems to suggest that this is not hyperadrenergic flushing. Not sure exactly what that leaves us with, but the doctor at the Mayo, or one of the other two who his doctor has contacted seems to be who he needs to see next. So we're waiting for a response from any of them, and hoping that the latest addition to the medication will help in the meantime.