Friday, March 13, 2009

thymic hyperplasia, no sign of a carcinoid

Unfortunately the report from pathology is that while the thymus was too large and may have been contributing to breathing difficulties, it is not the location of the carcinoid that is still the best theory for what is causing the majority of Shawn's symptoms.  

In fact, we had started to suspect this in the last few days as we've seen a few episodes that seemed awfully close to a spell.  But it was hard to tell for sure, as he also had a temperature that could account for the flush face and with his level of inactivity the blood pressure wasn't overwhelmingly high.

Tonight as if there were any doubt, after his most active day since the surgery he had a full blown version with blood pressure of 204/89.  As of tonight, he's now back on all the same medicine he was taking prior to surgery and we have an appointment on Wednesday with his endocrinologist to talk about next steps.   

4 comments:

Chicago Mom (Heather) said...

I'm so sorry. I know you were looking for some type of resolution... It must feel like you're back to square 1 (or even further back than that).

Anonymous said...

Reminds of an Eric Clapton song called "Another Ticket"; here are a few lines:
Everytime you think you've run the course,
Seems you've got to ride another horse.
Everytime you think you're near the end,
You turn around and find another ticket.


However, it also reminds me of some lines from "The Long Run" by the Eagles:
Well, we're scared, but we ain't shakin'
Kinda bent, but we ain't breakin'
in the long run


You guys may be kinda bent but I know you ain't breakin'.

Anonymous said...

I am also sorry to hear that you don't yet have a clear resolution. Not finding cancer is not normally bad news, but obviously this is an unusual situation. Still, things often look darkest just before the dawn, and some favorable turn of events may be just around the corner. I will keep hoping, and send it your way by the bucketful whenever I can.

Anonymous said...
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